Family Stories

Naomi House & Jacksplace supports children, young adults and their families from across central southern England.  Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.

Faith smiles

Faith's Story

Faith has Dravet syndrome, a rare form of epilepsy that has a wide range of traits such as autism, ataxia, learning difficulties, speech delay and mobility problems. In her story, her parents talk about the importance of respite.

Read Faith's Story
Ethan 1

Ethan's Story

At the age of just 14 months, little Ethan was diagnosed with a brain tumour. He spent the next nine months in hospital, and many of those in intensive care. This is his story.

Read Ethan's Story

Lucy's Story

In this story, Lucy tells us all about family life with congenital muscular dystrophy and how Jacksplace has given her independence and freedom when she needed it most. Also included is a poem Lucy wrote about Jacksplace.

Read Lucy's Story

Charlie's Story

22 year old Charlie, who visits Jacksplace, was born with Ataxia-Telangiectasia, a rare condition that affects the nervous system, immune system and makes the risk of getting various cancers high. This is his story, in his own words.

Read Charlie's Story