Each family has a different story to tell about the support the hospice has given them. We're incredibly thankful to those who have shared their story with us. Find out how Naomi House & Jacksplace makes such a huge difference to families in the videos and articles below.
Ruben has been visiting Naomi House for regular respite since he was 1 year old. Although Ruben hasn’t received a final diagnosis, he has many of the characteristics of the genetic disorder, Noonan syndrome. This is his story.
Liam has the very rare genetic condition, Sox 2 anophthalmia syndrome, which means he was born with no eyeballs. He has learning disabilities, severe epilepsy and reduced hearing in one ear. This is his story.
3-year-old Marlowe has Trisomy 21 (also known as Down’s Syndrome), hypothyroidism, cardiac anomalies and lung disease. She’s a happy, loving, cheeky baby that opens her heart to anyone. This is her story.
22 year old Charlie, who visits Jacksplace, was born with Ataxia-Telangiectasia, a rare condition that affects the nervous system, immune system and makes the risk of getting various cancers high. This is his story, in his own words.
