For my second blog post, I want to talk about how amazing it is to have respite care, not only at a hospice itself, but also out and about!
Having complex needs is a challenge each and every day, meaning outings can sometimes be difficult to plan and are often few and far between for a lot of children with varying disabilities, especially those that are more severe, complex and life limiting. However, because of the fully trained carers and nurses, it's much easier to go on outings and feel confident and safe in the knowledge that your needs will be met quickly and efficiently.
Over the years, I've been on many trips with both Naomi House & Jacksplace and Demelza Hospice, from the more common cinema trips, shopping days and pub quiz nights, to special invitation visits - my ultimate being a trip to the BBC Studios!
Whilst I'm fortunate in that I'm also able to go out when at home, many children lack the necessary support needed to be able to enjoy getting out and about safely, and it's children's hospices that give them these special opportunities to do just that.
Click here to read Lucy's third blog of the series.