Ruben has been visiting Naomi House for regular respite since he was 1 year old. Although Ruben hasn’t received a final diagnosis, he has many of the characteristics of the genetic disorder, Noonan syndrome. This is his story.
Liam has the very rare genetic condition, Sox 2 anophthalmia syndrome, which means he was born with no eyeballs. He has learning disabilities, severe epilepsy and reduced hearing in one ear. This is his story.