Family Stories
Naomi House & Jacksplace supports children, young adults and their families from across central southern England. Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.
Evie's Story
Evie had a progressive neurological disorder known as Labrune syndrome. She visited Naomi House since the age of 7 for respite care. Her condition caused a gradual deterioration in her health and sadly, in June 2020, she passed away at the age of just 12. This is her story.
Read Evie's Story
Ollie's Story
Ollie was born with Alternating Hemiplegia of Childhood, meaning any muscle in his body can become paralysed at any time. Ollie is a happy, cheeky boy that smiles constantly, loves people and loves life. This is his story.
Read Ollie's Story
Eva's Story
Eva has Rett syndrome, a rare genetic disorder which affects brain development, resulting in mental and physical disability. Eva has a very big heart with a lot of love to give. This is her story.
Read Eva's Story
Ryan's Story
Ryan has Duchenne Muscular Dystrophy (DMD), a genetic condition which gradually causes the muscles to weaken, leading to an increasing level of disability. This is his story, told by mum, Abbi.
Read Ryan's Story