Family Stories

Naomi House & Jacksplace supports children, young adults and their families from across central southern England.  Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.

Hector, Jessica and Adam

Hector's Story

When Jessica was pregnant, the couple found out that baby Hector had trisomy 18. Most babies with this condition die before or shortly after being born. This is Hector's story.

Read Hector's Story

Heidi’s Story

10-year-old Heidi was a happy, smiley girl who loved Disney films, being outdoors, loud music and cuddles with her dog, Milo. Heidi was born with the very rare condition, Wolf-Hirschhorn syndrome. This is her story.

Read Heidi’s Story
Alfie and grandad

Alfie's Story

Alfie has cerebral palsy caused by brain damage during a very difficult birth. He is unable to stand, walk, sit, or even play with his toys on his own. He has epilepsy, hearing difficulties and is fed via a gastrostomy. This is his story.

Read Alfie's Story
Bruce smiles

Bruce's Story

Five year old Bruce is a happy little boy with a smile that will brighten your day. He has severe bi-lateral cerebral palsy, epilepsy and no independent mobility, making him completely dependent on others. This is his story.

Read Bruce's Story