Naomi House & Jacksplace supports children, young adults and their families from across central southern England. Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.
Eva has Rett syndrome, a rare genetic disorder which affects brain development, resulting in mental and physical disability. Eva has a very big heart with a lot of love to give. This is her story.Read Eva's Story
Ryan has Duchenne Muscular Dystrophy (DMD), a genetic condition which gradually causes the muscles to weaken, leading to an increasing level of disability. This is his story, told by mum, Abbi.Read Ryan's Story
Faith has Dravet syndrome, a rare form of epilepsy that has a wide range of traits such as autism, ataxia, learning difficulties, speech delay and mobility problems. In her story, her parents talk about the importance of respite.Read Faith's Story