Family Stories

Naomi House & Jacksplace supports children, young adults and their families from across central southern England.  Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.

Eva smiling

Eva's Story

Eva has Rett syndrome, a rare genetic disorder which affects brain development, resulting in mental and physical disability. Eva has a very big heart with a lot of love to give. This is her story.

Read Eva's Story
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Ryan's Story

Ryan has Duchenne Muscular Dystrophy (DMD), a genetic condition which gradually causes the muscles to weaken, leading to an increasing level of disability. This is his story, told by mum, Abbi.

Read Ryan's Story
Faith smiles

Faith's Story

Faith has Dravet syndrome, a rare form of epilepsy that has a wide range of traits such as autism, ataxia, learning difficulties, speech delay and mobility problems. In her story, her parents talk about the importance of respite.

Read Faith's Story
Ethan 1

Ethan's Story

At the age of just 14 months, little Ethan was diagnosed with a brain tumour. He spent the next nine months in hospital, and many of those in intensive care. This is his story.

Read Ethan's Story