Naomi House & Jacksplace supports children, young adults and their families from across central southern England. Each family has their own unique story to tell, and as they bravely speak through the videos and written stories below, you can find out how the hospices are there to support them on good days, difficult days and last days.
Ruben has been visiting Naomi House for regular respite since he was 1 year old. Although Ruben hasn’t received a final diagnosis, he has many of the characteristics of the genetic disorder, Noonan syndrome. This is his story.Read Ruben’s Story
Tamara had a very difficult start in life after being born prematurely at 26 weeks. She had a collapsed lung, a brain haemorrhage and later on was diagnosed with epilepsy and cerebral palsy. This is her story.Read Tamara's story
Lesley, Kevin and their children's story is a devastating one, where not only did they find out that their little daughter had the rare genetic condition, Tay-Sachs disease, but that their two younger sons had it too.Read Lesley's Story